Stress Coping Strategies in Parents of Children With Autism Spectrum Disorder
DOI:
https://doi.org/10.61841/6zd66r16Keywords:
autism spectrum disorder,, parents stress, coping strategiesAbstract
Autism spectrum disorder is a neurodevelopmental disorder and can be a lifelong disorder. From the moment a diagnosis of autism is revealed, parents are obliged to take an important role and caring for children with autism spectrum disorder often presents challenges related to stress that parents can experience. Changes in behavior in one family member than will give effect to other family members. At present, in handling autism spectrum disorder, other than through interventions that are focused on stimulation of development and reduction of maladaptive behaviors, the other main consensus is to help families achieve appropriate care, obtain appropriate coping mechanisms and reduce stress on parents or caregivers. There are several measuring instruments that are often used to help clinicians determine the degree of stress in parents who have children with autism spectrum disorder including Parent Stress Index (PSI), Parental Stress Scale (PSS), and Autism Parenting Stress Index (APSI). Some strategies in dealing with stress in family especially parents of children with autism spectrum disorder are parental psychoeducation strategy, parent training strategy, useful parenting coping strategies, parents self care strategy, eco-map strategy, group therapy strategies, individual therapy for parents and social support strategy.
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1. Poslawsky IE. Parenting A Child With Autism, Support for Early Parent-Child Interaction, Desertation for Doctor. Docete, Uthrecht; 2013.
2. Bristol MM, Gallagher JJ, Holt KD. Maternal depressive symptoms in autism: Response to psychoeducational intervention. Rehabil Psychol. 1993;38(1):3–10.
3. Feldman MA, Werner SE. Collateral effects of behavioral parent. PsycINFOBehavioral Interv. 2002;17(2):75–83.
4. Gray DE. Ten years on: A longitudinal study of families of children with autism. J Intellect Dev Disabil. 2002;27(3):215–22.
5. Howlin P, Goode S, Hutton J, Rutter M. Adult outcome for children with autism. J Child Psychol Psychiatry Allied Discip. 2004;45(2):212–29.
6. Hutton AM, Caron SL. Experiences of Families With Children With Autism in Rural New England. Focus Autism Other Dev Disabl. 2005;20(3):180–9.
7. Tonge B, Brereton A, Kiomall M, Mackinnon A, King N, Rinehart N. Effects on parental mental health of an education and skills training program for parents of young children with autism: A randomized controlled trial. J Am Acad Child Adolesc Psychiatry [Internet]. 2006;45(5):561–9. Available from:
http://dx.doi.org/10.1097/01.chi.0000205701.48324.26
8. Yirmiya N, Shaked M. Psychiatric disorders in parents of children with autism: A meta-analysis. J Child Psychol Psychiatry Allied Discip. 2005;46(1):69–83.
9. Mancil GR, Boyd BA, Bedesem P. Parental Stress and Autism: Are There Useful Coping Strategies? Educ Train Dev Disabil. 2009;44(4):523–37.
10. Fuentes Joaquin. Bakare Muideen. Munir Kerim. Aguayo Patricia. Gaddour Naoufel. Oner Ozgur. Mercadente Marcos. Autism Spectrum Disorder. In: IACAPAP text book of Child and Adolescent Mental Health. 2012. p. 1–27.
11. Association AP. DSM-5 Autism Spectrum Disorder Fact Sheet. 2014;(October):233–55.
12. McCreadie M. The Parent Programme: A Psycho-educational Intervention for Parents of Children with Autism. 2013;1–156. Available from: http://etheses.qmu.ac.uk/1632/1/1632.pdf
13. Gorman SO. ATTACHMENT THEORY, FAMILY SYSTEM.pdf. 2012;31(3):1–16.
14. Altiere MJ, Von Kluge S. Family functioning and coping behaviors in parents of children with Autism. J Child Fam Stud. 2009;18(1):83–92.
15. Dzubay S. Parental Grief, Coping Strategies, and Challenges When a Child has Autism. Month. 2011;(October).
16. Penzo J, Harvey P. Understanding parental grief as a response to mental illness: Implications for practice. J Fam Soc Work. 2008;11(3):323–38.
17. Ludlow A, Skelly C, Rohleder P. Challenges faced by parents of children diagnosed with autism spectrum disorder. J Health Psychol. 2012;17(5):702–11.
18. Davis NO, Carter AS. Parenting stress in mothers and fathers of toddlers with autism spectrum disorder: Associations with child characteristics. J Autism Dev Disord. 2008;38(7):1278–91.
19. Lecavalier L, Leone S, Wiltz J. The impact of behaviour problems on caregiver stress in young people with autism spectrum disorder. J Intellect Disabil Res. 2006;50(3):172–83.
20. Liu X, Hubbard JA, Fabes RA, Adam JB. Sleep disturbances and correlates of children with autism spectrum disorder. Child Psychiatry Hum Dev. 2006;37(2):179–91.
21. Sharpley CF, Bitsika V, Efremidis B. Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism. J Intellect Dev Disabil. 1997;22(1):19–28.
22. Lyons AM, Leon SC, Phelps CER, Dunleavy AM. The impact of child symptom severity on stress among parents of children with asd: The moderating role of coping styles. J Child Fam Stud. 2010;19(4):516–24.
23. Dardas LA, Ahmad MM. Psychometric properties of the Parenting Stress Index with parents of children with autistic disorder. J Intellect Disabil Res. 2014;58(6):560–71.
24. Berry JO, Jones WH. The parental stress scale: Initial psychometric evidence. J Soc Pers Relat. 1995;12(3):463–72.
25. Silva LMT, Schalock M. Autism parenting stress index: Initial psychometric evidence. J Autism Dev Disord. 2012;42(4):566–74.
26. Bhagat V, Haque M, Simbak N, Jaalam K. Social intelligence of parents with autism spectrum disorder impacts their emotional behaviour: A new proposed model for stabilising emotionality of these parents impacting their social intelligence. Adv Hum Biol [Internet]. 2017;7(2):43. Available from: http://www.aihbonline.com/text.asp?2017/7/2/43/205388
27. Bearss K, Johnson C, Smith T, Lecavalier L, Swiezy N, Aman M, et al. Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: A randomized clinical trial. JAMA - J Am Med Assoc. 2015;313(15):1524–33.
28. Sharma D, Sharma AJ. Autism spectrum disorder-Impact on parenting and coping strategies. Int J Indian Psychol. 2016;3(4):16–31.
29. Bayat M. Evidence of resilience in families of children with autism. J Intellect Disabil Res. 2007;51(9):702–14.
30. Milshtein S, Yirmiya N, Oppenheim D, Koren-Karie N, Levi S. Resolution of the diagnosis among parents of children with autism spectrum disorder: Associations with child and parent characteristics. J Autism Dev Disord. 2010;40(1):89–99.
31. Oppenheim D, Koren-Karie N, Dolev S, Yirmiya N. Maternal insightfulness and resolution of the diagnosis are associated with secure attachment in preschoolers with autism spectrum disorder. Child Dev. 2009;80(2):519–27.
32. Phelps KW, Hodgson JL, McCammon SL, Lamson AL. Caring for an individual with autism disorder: A qualitative analysis. J Intellect Dev Disabil. 2009;34(1):27–35.
33. Pottie CG, Ingram KM. Daily Stress, Coping, and Well-Being in Parents of Children With Autism: A Multilevel Modeling Approach. J Fam Psychol. 2008;22(6):855–64.
34. Twoy R, Connolly PM, Novak JM. Coping strategies used by parents of children with autism. J Am Acad Nurse Pract. 2007;19(5):251–60.
35. Tunali B, Power TG. Coping by Redefinition: Cognitive Appraisals in Mothers of Children with Autism and Children Without Autism. J Autism Dev Disord. 2002;32(1):25–34.
36. Harandi, A., Fischbach R. How do parents respond to stigma and hurtful words said to or about their child on the autism spectrum? Austin J Autism Relat Disabil. 2016;2(4):1030–7.
37. Gray DE. Coping over time: The parents of children with autism. J Intellect Disabil Res. 2006;50(12):970– 6.
38. Gorsky SM. Self-Care Strategies Among Parents With a Child Diagnosed With Autism Spectrum Disorder. Calif State Univ Scolarworks. 2014;
39. Merluzzi T V., Philip EJ, Vachon DO, Heitzmann CA. Assessment of self-efficacy for caregiving: The critical role of self-care in caregiver stress and burden. Palliat Support Care. 2011;9(1):15–24.
40. Izadi-Mazidi M, Riahi F, Khajeddin N. Effect of cognitive behavior group therapy on parenting stress in mothers of children with autism. Iran J Psychiatry Behav Sci. 2015;9(3).
41. Catalano D, Holloway L, Mpofu E. Mental health interventions for parent carers of children with autistic spectrum disorder: Practice guidelines from a critical interpretive synthesis (CIS) systematic review. Int J Environ Res Public Health. 2018;15(2):1–23.
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